11 Comments

  1. Carrie Bancroft
    May 25, 2018 @ 10:36 am

    Lovely…simply lovely

    Reply

    • Jillianne
      May 25, 2018 @ 1:22 pm

      I am SO glad to have you as a part of my tea party 😉 Thanks for reading – share it with my nurse buddies <3 Get ready for more! Posts, that is. Not more drama LOL

      Reply

  2. Carolyn Thomas
    May 25, 2018 @ 2:06 pm

    Thanks so much for the chronological outline portrayed with such poetic clarity, Jillianne. I had somehow missed a whole chunk of this story along the way (I was still back in the vasospasm/microvascular pain stage with you!) so I really appreciated this overview. I’m so sorry you went through all of this drama. Thank you for this, and for sharing the brilliant Baal Shem Tov quote: “Let me fall if I must fall. The one I become will catch me.”

    I think I’ll go embroider that on a pillow. . .

    hugs to you,
    C.

    Reply

    • Jillianne
      May 27, 2018 @ 7:22 pm

      Thanks, Carolyn. So much happened it was hard to write about in such small pieces. I will be following up for sure. Thanks for all of your support and information early on – it definitely helped me speak to my team about the kind of pain I was having which as we both know is critical in getting the referrals and help that are needed. We got the first 6 months of 2017 right 😉 Now to figure out what the heck happened the last 6!

      Hugs right back, HeartSister 🙂

      Reply

  3. Rebeca
    May 25, 2018 @ 4:21 pm

    Beautifully written. Thank you for sharing your adventures in Wonderland.

    Reply

    • Jillianne
      May 27, 2018 @ 7:23 pm

      Thanks, Rebeca! I hope you are well and enjoying your new heart!

      Reply

  4. Jessica Bains
    May 25, 2018 @ 5:10 pm

    Wow! Just WOW!

    Reply

  5. nobody in particular
    May 27, 2018 @ 3:39 am

    Firstly, you don’t know me but I’ve read this blog from the other side of an ocean for a while now, and I am both stunned and incredibly relieved that you are still alive. Secondly, your writing is exquisitely beautiful, and I’m so glad to have some more of it to digest. Hopefully the next 3.5 years are far less eventful!

    Reply

    • Jillianne
      May 27, 2018 @ 7:24 pm

      I read your blog as well, and the sentiments are shared. I hope now that I have ‘broken the seal’ on this new chapter, I will be able to write with greater ease. It has been a very tough year. I hope this next chapter has less drama for the both of us!

      Reply

  6. Alison Grant-Preville
    May 27, 2018 @ 9:10 pm

    Sending our love, Jillian, our miracle neice! Your writing is truly stunning and inspiring and it goes without saying what a gift it is that are you are alive. I’m dreaming up a performance based on the phrase you quote: Let me fall if I must fall. The one I become will catch me. So beautiful. I’ll let you know when it happens. Most likely Fringe 2108 in August. Dedicated to you, of course. xoxo. Can’t wait to see you soon!

    Reply

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