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  1. Val Stewart
    February 6, 2017 @ 12:04 pm

    Wow! Jillianne! There’s a lot of anxiety and fear here. And totally understandable. I think you are doing a good thing by sharing this. It’s too big to keep to yourself. I know you are grateful for the life you now have but like you said, there is another “gift” that comes with it. I pray for some kind of peace for you, without fear. Love you, kiddo.
    Val STewart

  2. Robyne
    February 10, 2017 @ 3:18 pm

    Thank you for writing this, for putting these thoughts and feelings into words.

  3. Carolyn Thomas
    February 10, 2017 @ 7:34 pm

    I love that paradox you describe here: joy and pain, anxiety and purpose…. It seems surreal but I suspect it’s far more common than we might expect. Once again you have described it all in such a compelling fashion.I wish you calm and dreamless sleep for a while…

    • Jillianne
      February 17, 2017 @ 10:43 am

      Thanks, Carolyn. As always your support means a lot! Fact – I just re-read your post about MVD. Although I am pretty sure this isn’t what I have, it’s likely a coronary vasospasm – pain management is quite possibly part of my new regimen. Thankfully nitro patches at night, calcium channel blockers and as needed nitro spray are now my new friends and seem to be helping. This new series of events has indeed been trying, but I am feeling better with it all now. Thanks, Heart Sister! <3

  4. Your favourite nurse!!!! Ha ha ok maybe second fav next to Jen
    February 16, 2017 @ 10:15 pm

    You are my hero Ms Code!!!! I am so blessed to know you and thank you for this post.

    • Jillianne
      February 17, 2017 @ 10:45 am

      How mysterious. I wonder which favourite nurse this is? <3 I write these for you as much as anyone else, including myself. I am hoping I can have the courage to make them more frequent.

  5. Bonnie
    February 24, 2017 @ 9:34 pm

    Hee hee, three guesses first two don’t count. I love reading them

  6. heart failure to HARVARD – I Am. Still. ALIVE.
    August 17, 2019 @ 10:33 am

    […] A Mind of My Own and the Heart of Another […]

  7. Scott Lear
    January 29, 2021 @ 4:19 am

    Hi Jillianne, thanks so much for sharing this story. I imagine so many people can relate to it and find solace in reading it.