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  1. Carolyn Thomas
    August 22, 2015 @ 5:27 am

    Beautifully written and so profoundly moving. You’ve been on an adventure for the past couple years that few of us (even most other heart patients) could even imagine, and – as we chatted about a few days ago – on the hierarchy of heart disease, transplants top the list. You didn’t sign up for this, you didn’t see it coming, and, like your late heart brother Mark did, you live with the pervasive and unspoken reality of “What if?” It seems that small daily victories like walking up the stairs (yay!) not only help to balance living with pervasive risk, but support your inspiring “I love every day I have been given” worldview. Best of luck to you, and thank you for writing this important post.


    • Jillianne Code
      August 23, 2015 @ 11:28 am

      The reality is we all live with the ‘what if?’ The difference is, as a heart family, we know it 🙂 Thank you for all the work you do in raising awareness. One day, If I can manage to be diligent in my writing, I can have the same impact you have had!


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